Change of Plans

We had great plans for our Saturday the weekend before last. We had planned to go to the circus. Not only does Josie have a dad who gets a lot of cool perks with his job but she has friends who have dads with jobs that have cool perks. Mia's dad Markus is the managing director of Teatro Zinzanni and they just started a kids program. http://zica.zinzanni.org/zirkus/ We had been talking up going to the circus all week.

Well, Benjamin had other plans for the day. Around 8:30 on Saturday morning Benjamin seemed to have passed out. He started trying to lay his head down on the ground as if to go to sleep... very uncharacteristic. I picked him up and he just went limp in my arms. We called 911, they checked him over and he seemed just fine. He looked like a peaceful sleeping baby. But he was not just sleeping, he was OUT. I couldn't wake him. So, they told us that they couldn't really do anything more but that we should go to Children's. So, off we went. After several hours in the ER, Josie very nicely asked if she thought we would still get to go to the circus. Marty, Benjamin and I spent another 4 or 5 hours at the hospital but Josie actually made it to the circus, thanks to our friends! Mark very graciously picked Josie up from the hospital and headed to the circus with his daughter, Janey. I sent Jen a text saying Josie might be hungry and so she packed Josie a lunch and looked out for her. It was nice knowing she was having fun and well taken care of.

Sunday and Monday mornings were almost an exact repeat of Saturday morning, minus the 911 call. We spent pretty much all day on Sunday and Monday back at Children's Hospital. Thanks to Liz and Stephanie for taking Josie on Sunday and Julie was here at the house to watch Josie on Monday. Again, it was nice knowing Josie was in good hands as we were at the hospital for 2 more long days. After the episode on Monday along with a video that Marty took during, per their request, they have diagnosed him with seizure disorder.
Monday he started taking seizure medication and has been seizure free (thank God!) since Monday morning.

Josie has been the very doting and caring big sister. Always checking in to see how her little brother is doing. On the way back from the hospital for us and the circus for her I turned around in the car and saw them holding hands in the back seat.

Benjamin has been a little trooper throughout it all. He was barely bothered by all the testing, long days at the hospital and even dealt with being fully sedated for the MRI like a champ. His lively spirit teaches me every day to live in the moment and reminds me that he is very much a healthy little boy. I'm trying to be more flexible as a mom and in life but I will not welcome that kind of "change of plans" again.